So much time has passed since I last blogged but I feel the calling. I need a place to record thoughts, to share ideas, and to seek solace in self-expression. So I am back. I don't know where this blog will go, or what direction it will take but most likely it will evolve into stories of my day to day life with our adopted daughter, stories from my classroom, and tall tales of silly life events.
In the months that I have been gone I have gained a toddler that has replaced my tiny baby. This toddler is adventurous and fearless. She seeks out endless activities and is never stopped by anything. This child has a free spirit and nothing can contain her (not even the baby gates any more).
So I'll complete today's post with a summary of where we have been, and where we are going.
Our adoption of love bug is still not complete, not due to anything more than timelines, paperwork, and medical issues. Little one was diagnosed with Epilepsy at 7 months old, and while it is mild this diagnosis snowballed into a whole new avalanche of paperwork that has continued the adoption for more than a year. Legally, she is free as she was chosen for our family at birth but that comes with complications of it's own I suppose. We don't have any extra advocates, she is still a ward of the state without being in a traditional "foster care" situation, and currently our agency is appealing a denial of a request for SSI support for her based on the diagnosis. I have mixed feelings about this, but at the end of the day it would allow us to keep medicaid.
Love bug is thriving, and is beautiful. She is inquisitive and strong but she is struggling in several developmental areas. She has been delayed with Gross Motor Movement since approximately 9 months old, is wearing glasses for a fairly significant visual deficits, and recently was evaluated and diagnosed with some sensory integration issues. So she's the proud owner of glasses (and we are impatiently waiting for her miraflex frames to come in) and she has SMO's from Sure-Fit on her feet to correct quite a few muscle tone and foot placement issues.
None of these are singularly debilitating, but added to the Epilepsy it gives this tiny one a lot of mountains to climb. It has also given her mama's a lot of mountains to climb. So many days I struggle with fighting the "it's just not fair" monster. I, like all mothers, want my child to have everything she wants. I want her to do anything she chooses without struggling. I also know that so many glimpse into our world and see none of what is lying underneath , which is part of why I want to share what we have going on. It is so important to me to share the highs, the lows, the glows, the grows. Her progress with Physical Therapy has been tremendous, and we are hoping OT is going to help address a lot of our additional concerns. We have a great team of people who LOVE her, and are helping her reach her goals.
As for me, I've enjoyed the summer spending time with her. While teaching in this state certainly has it's challenges a beautiful positive is that I get to spend my summer with her! We have traveled, played, explored, cuddled, and learned so much! I have missed writing though, and am looking forward to really keeping this blog going. I have so many things to share, but I won't do them all today.
For now, enjoy your Sunday! Take some time to take care of you, love yourself, and you'll love others even more.
In the months that I have been gone I have gained a toddler that has replaced my tiny baby. This toddler is adventurous and fearless. She seeks out endless activities and is never stopped by anything. This child has a free spirit and nothing can contain her (not even the baby gates any more).
So I'll complete today's post with a summary of where we have been, and where we are going.
Our adoption of love bug is still not complete, not due to anything more than timelines, paperwork, and medical issues. Little one was diagnosed with Epilepsy at 7 months old, and while it is mild this diagnosis snowballed into a whole new avalanche of paperwork that has continued the adoption for more than a year. Legally, she is free as she was chosen for our family at birth but that comes with complications of it's own I suppose. We don't have any extra advocates, she is still a ward of the state without being in a traditional "foster care" situation, and currently our agency is appealing a denial of a request for SSI support for her based on the diagnosis. I have mixed feelings about this, but at the end of the day it would allow us to keep medicaid.
Love bug is thriving, and is beautiful. She is inquisitive and strong but she is struggling in several developmental areas. She has been delayed with Gross Motor Movement since approximately 9 months old, is wearing glasses for a fairly significant visual deficits, and recently was evaluated and diagnosed with some sensory integration issues. So she's the proud owner of glasses (and we are impatiently waiting for her miraflex frames to come in) and she has SMO's from Sure-Fit on her feet to correct quite a few muscle tone and foot placement issues.
None of these are singularly debilitating, but added to the Epilepsy it gives this tiny one a lot of mountains to climb. It has also given her mama's a lot of mountains to climb. So many days I struggle with fighting the "it's just not fair" monster. I, like all mothers, want my child to have everything she wants. I want her to do anything she chooses without struggling. I also know that so many glimpse into our world and see none of what is lying underneath , which is part of why I want to share what we have going on. It is so important to me to share the highs, the lows, the glows, the grows. Her progress with Physical Therapy has been tremendous, and we are hoping OT is going to help address a lot of our additional concerns. We have a great team of people who LOVE her, and are helping her reach her goals.
As for me, I've enjoyed the summer spending time with her. While teaching in this state certainly has it's challenges a beautiful positive is that I get to spend my summer with her! We have traveled, played, explored, cuddled, and learned so much! I have missed writing though, and am looking forward to really keeping this blog going. I have so many things to share, but I won't do them all today.
For now, enjoy your Sunday! Take some time to take care of you, love yourself, and you'll love others even more.
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