Skip to main content
Dear Self,
It's okay that you are anxious right now. You are scared, and you want to do all the things the right way. You're doing okay. Yes, these days seem long and the information is overwhelming. Embrace it. Give that new diagnosis a big hug, and remind yourself to take life on in the same way your sweet little one does. Arms wide open, eyes wide, heart full. Be confident in your ability to trust your own judgement. Remind yourself that these moments will pass all too quickly. 

What I just wrote is what I try and tell myself every day. I need these reminders. As a parent of a toddler with multiple different developmental concerns and deficits, I get caught up in the scary web I weave with the threat of anxiety. I want to do what is right, help her overcome all the obstacles in her path. I want to fight right next to her as she learns new skills, re-learns other ones, and conquers these mountains. 

Our current mountains include continued physical developmental delays, sensory processing deficits, eye issues with convergence, Epilepsy, and now the latest mountain is dysphagia with delayed swallow and some oral motor issues. These things make up the valleys in the mountains - but the peaks - the peaks are made of little girl laughs, sweet high fives, hugs, pretend play with puppies and baby dolls. The peaks are amazing, and the valleys are survivable with a team of people to lead us out. 

So I tell myself again... "Look up, find the sun, focus on the smile that little girl shows you, and breath. As cliche as it is, it is going to be okay."

Comments

Popular posts from this blog

New Adventures

I have recently taken the position of Director of Children and Youth Education (or some other convoluted title that seems to keep changing) at our Church . Our church is a fabulous one (check it out here) in uptown Charlotte. We have 3 main focuses, Purse Justice, Practice Inclusion, and Promote the Arts and we truly try and live out our focuses in the ministries that the church supports.  The next big thing we are involved with is Charlotte Pride.With that I became intent on providing some of our families with resources for talking about other types of families. I did a quick Google search and came up empty handed outside of a few references to books that are considered diverse, and the occasional blog post. It was amazing to me however to find that there were plenty of seriously not-loving articles on how to talk to your children about  "gay people". This baffles me, for so many of them were filled with inaccurate information and hateful words. Jesus came into this world...

Simple Sunday Sample

The Christmas holidays came quickly around here - began the day we brought Harper home, and it continues. The adventures of parenting have been hilarious, overwhelming, terrifying, and rewarding. I am head over heels in love with this little one and I wouldn't trade her beginnings for the world.  Those first few days we were so lucky to be supported by a close friend who loaded our car up with outfits, blankets, formula, and a swing! She also had tons of great advice on how to find community, books to read, and most of all reassured me that my extreme anxiety was totally normal. Another amazing friend made sure Miss Harper had  a comfy place to sleep and great bottles! Those small gestures were amazing sanity savers - I had no idea there would be so many decisions to make regarding baby stuff! I had (and still have) so many questions.  Our first days were a blur of fixing formula,snuggling, figuring out what we needed for her, and wrapping our heads round the fact that ye...